Legionnaires’ Disease Update 3

Sorry for no updates but we didn’t have any new information so I didn’t really have anything to post. Until today.

The good news is we now know what she has, and it ain’t LD. Turns out she’s got two separate things going on with her at the moment. The first is Myelofibrosis which is a “mild” type of cancer that affects the bone marrow’s ability to produce the “juice” it’s supposed to. It’s treatable, if not curable, by taking steroids.

The other thing she has is some sort of Lymphoma, but they’re not sure what type it is yet.

They can’t start treating the myelofibrosis yet though because they believe she still has some sort of infection and taking steroids would cause that infection to get worse.

Her breathing problems aren’t really breathing issues. Her lungs are processing the oxygen just fine, it’s her blood that isn’t. The myelofibrosis is causing her body to not produce enough blood cells to process the oxygen so she’s going to be attached to an O2 tank or O2 generator for the long term.

Everyone is optimistic and a huge weight has been taken off our shoulders since we now, at least, know what’s wrong with her and can start dealing with treatment.

I just wanted to thank all of you who have reached out over the last few weeks wishing my mom well. She, and I, really appreciate all your well wishes, so, thanks!

**UPDATE 3/20/2008 2:20 PM PDT**

Here’s a very informative link about myelofibrosis, also known as IM. It’s a PDF so it might load slowly.

Posted on March 20, 2008, 11:17 By
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